Question 1

LearnSkin: Brindley Brooks on the HS Patient Perspective: Tips for Whole Person Care

Accepted Answer

Looking for better ways to work with your HS patients? We've got them right here. This week, we're joined by Brindley Brooks, founder of HS Connect, as she offers her own experience with HS, debunks one-size-fits-all myths of dieting and clothing, and provides tips on working with HS patients.

After not telling anyone about her HS diagnosis for 27+ years, Brindley Brooks started her HS surgery journey and founded HS Connect. Her passion is to help everyone find their voice and not carry the shame and stigma alone that comes with this diagnosis.

HS Connect is a patient-led non-profit organization committed to connecting Hidradenitis Suppurativa patients, families, and the medical community with resources, support, and solutions, including HS support groups.
To learn more about HS, attend the integrative panel with Brindley Brooks at the 2022 Integrative Dermatology Symposium.

Listen here (https://open.spotify.com/episode/36mSzDilnQt6d3BeR1SpJ6)

Question 2

Mario Otero and CO2 Laser Surgery

Accepted Answer

Join Dominick and Mario as Mario opens up about his journey with HS and discussed his experience as a patient undergoing CO2 laser surgery.

Listen here  (https://drive.google.com/file/d/1N_WwtuMrSJeAoVfNPrsUrYU2vigY7_VK/view?usp=share_link)

Question 3

HS, Pregnancy & Hormones with Dr. Jennifer Hsiao

Accepted Answer

Join Brindley and Dr. Hsiao as they discuss navigating pregnancy and managing HS, including the role of hormones in HS, the impact of pregnancy, managing HS during pregnancy and recognizing and addressing possible comorbidities that may arise.

Listen here (https://drive.google.com/file/d/1sBIRAQfsKnaTZa77g6QoqXnzX3BiL0nr/view?usp=share_link)

Question 4

Navigating the HS Surgery Discussion with your Surgeon

Accepted Answer

Dr. Goldberg, Denise and Brindley discuss navigating a discussion with your surgeon, having realistic expectations, staging surgeries, how to tell if your surgeon is a good fit, and more!

Listen here (https://drive.google.com/file/d/1NGXD_8B3B0fhV_Jymoe-Wgtho_efdZlU/view?usp=share_link)

Question 5

Atypical HS & the use of Antibiotics in the Treatment of HS

Accepted Answer

Dr. Vivian Shi talks with us about atypical HS and the use of antibiotics in the treatment of HS; why they're prescribed and their role in treatment.

Listen here (https://drive.google.com/file/d/1wH5JLQsUXORcUmG_BF7zfmsoDkoAYZ_Q/view?usp=share_link)

Question 6

HS: A Discussion Between Men (...but not just for men)

Accepted Answer

Dr. Steven Daveluy talks with Dominick Juliano about men with HS, weight, stress, smoking, self esteem, the influence of hope on the body...and loofahs!

Listen here (https://drive.google.com/file/d/1hiNXgqBNSCKkAfGN5sSSjlxLIkxkKXsz/view?usp=share_link)

Question 7

Understanding Anxiety, Depression & Mindfulness

Accepted Answer

Join us as Dr. Ellis Edmunds discusses anxiety, depression and mindfulness.

Listen here (https://drive.google.com/file/d/1fyYVIW946KN7J-tvfmF40wQ6tGHrKYg_/view?usp=share_link)

Question 8

Jackson Gilles: Singer, Song Writer & HS Advocate

Accepted Answer

Jackson has lived his life with Type 1 diabetes and HS.  Music became the constant that gave him comfort and hope.  After being on American Idol and TedTalk he has helped spread awareness of HS.

Listen here (https://drive.google.com/file/d/1-6d1lT-CrVzdPKesJjGxlRbkzCo0F2o9/view?usp=share_link)

Question 9

Troy Fugate: A Discussion on Biologics

Accepted Answer

A discussion about biologics, how they work and the role they play in the future of HS treatments.  Troy is the Vice President for Compliance Insight, Inc., a worldwide compliance consultant in the areas of pharmaceutical quality, operations, packaging, laboratory and construction activities.

Listen here (https://drive.google.com/file/d/1Exy7YLI70gIJoSuc9XLtfzqo_maJqfVV/view?usp=share_link)

Question 10

A discussion with Erin Martinez, Sex Therapist

Accepted Answer

Erin Martinez provides guidance and suggestions for the tough questions and discussions that we all face with our HS. She offers insight on how to handle situations with relationships, partners, sex and intimacy.  Erin is well known in the HS Community for her positivity and sound advice.  You don't want to miss this!

Listen here (https://drive.google.com/file/d/1g38j81gl_QvOT8Xv_5MzKVZl50qM3Ufm/view?usp=share_link)

Question 11

Pediatric Dermatologist, Dr. Colleen Cotton

Accepted Answer

Dr. Cotton is a pediatric dermatologist and joins us to discuss pediatric and adolescent HS as well as her recommendations for parents.  Join us as she answer questions from our community!

Listen here (https://drive.google.com/file/d/1sopoVAKFCjoyZGA1zHjfcZgz3rCzFu6c/view?usp=share_link)

Question 12

Art Therapy with Erica Pang

Accepted Answer

Art therapist and artist, Erica Pang, sits down with us to discuss the power of art and mind. Learn how art therapy can help with emotional stress, anxiety and depression, self care and life balance, life transitions, living with illness and coping with life after illness as well as life purpose, discovery and spirituality.  Sessions are available via Zoom and Doxy.  Visit her website to learn more at www.ericapang.com(http://www.ericapang.com/)

Listen here (https://drive.google.com/file/d/1s7ipF4RxOhsIJVEF7oHRSfOgoxGHYFDp/view?usp=share_link)

Question 13

Carbon Dioxide Laser Excision Marsupialization (CO2 laser surgery) with Dr. Berry Resnik

Accepted Answer

Dr. Barry Resnik, an HS Specialist, discusses the Staged Marsupial Excision Procedure (also known as the CO2 laser surgery/procedure) .  Learn more at the Resnik Skin Institute at www.drresnik.com(http://www.drresnik.com/)

Listen here (https://drive.google.com/file/d/16JdIJow-KTJzJlxu6AneyQrZDsdYIGoE/view?usp=share_link)

Question 14

How to be a Patient Advocate: Advice from an HS Patient Patient Podcast

Accepted Answer

HS Connect's Denise talks with StuffThatWorks about how she has learned to speak with doctors and advocate for her own health, as well as the health of others, through her over 40 years of suffering with HS.

Listen here (https://share.transistor.fm/s/5105c120)

Listen to other StuffThatWorks podcasts here.(https://www.stuffthatworks.health/podcast/?token=SKd8D6Fc)
More about StuffThatWorks can be found here.(https://www.hsconnect.org/post/hs-on-stuffthatworks) 
​

Question 15

LearnSkin Podcast

Accepted Answer

The LearnSkin Podcast series investigates the intersection of Eastern and Western medicine to inform an integrative approach to dermatology.  Join co-hosts Dr. Raja Sivamani and Dr. Hadar Lev-Tov as they discuss the latest in scientific research and treatment options with leading experts in integrative medicine and dermatology.  Brand new episodes are released every Thursday at 12pm PST.

Episodes here (https://www.learnskin.com/podcasts)

Question 16

Interview with Dr. Jonathan Kumuteo, Professional Boxer

Accepted Answer

Jonathan Kumuteo, professional boxer residing in the UK talks with us about his story and to speak about about HS.  He discusses his resilience and his journey to acceptance and how this helped him become stronger.  He maintains a strong advocacy to help men gain the courage to speak out about their HS.

Listen here (https://drive.google.com/file/d/1CkxWKJibLW6Bama3TTRbFMR8woCDjxaw/view?usp=share_link)

Podcasts

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