Who We Are
Our mission
HS Connect is a patient-led non-profit organization committed to connecting those who suffer from Hidradenitis Suppurativa and the medical community who treat us with support, solutions and resources.
Our goal
Our goals include furthering HS awareness and the study of HS, bringing factual and current information to colleges and universities, ridding the community of the outdated and antiquated HS training materials and to better educate medical residents and gain more interest in the HS field.
Our why
We created this organization to empower others to share your stories, allow your voices to be heard, and ensure you’re not living in silence. We are aware, first hand, of the toll this disease takes on one emotionally, physically, and mentally and love to encourage others in their journeys based on our experience and knowledge. Our goal is for HS to be as commonplace as any other disease, for those who suffer to stop living in shame, and to support and provide resources for all who suffer.
Our Offerings
HS Connect is run by volunteers and features articles, clinical trials, surveys, stories of others, photos, and more. This information is gathered, researched, and shared by HS advocates who donate our time to this cause. We pride ourselves on offering as many free resources as possible and do ask those who provide resources that are not free for a discount for the HS Community. HS Connect also pays, by way of donations, for some of the resources in turn offers them to the community at no cost. ​​
Watch our
Awareness Video here!
We do not diagnose, give direct medical advice, and/or treat. In certain circumstances we, as experienced advocates, may offer our opinions; this does not replace medical advice. We do, however, offer reliable and reputable information and resources for patients to make the best decisions for themselves and their personal hidradenitis suppurativa.